23 Apr 2009
Colin
is back at Kaiser in Walnut Creek now. He had a very hard transport and
was VERY stressed out by the time he got there. They had to give him
some sedative to calm him down for the trip because he was just
screaming because he was so upset.
It's
hard for me to see this because when he cries so hard it is hard for
him to breath. By the time we got there to meet him he was more or less
calmed down a little but still very sedated.
I
was able to hold him and feed him from a bottle today. He was so tired
that he only took about 15ml. This is fine because of his hard day. I
think he should be doing a little better tomorrow once he has gotten
some sleep and time to relax and calm down.
23 Apr 2009
Colin
is getting transferred back to Kaiser tomorrow!!!! I am very happy
because this means no more driving to the city every day. Although he
is not home yet, Kaiser is one step closer.
He
has been drinking from a bottle the last few feeds and has been doing
great. The last feeding, they said that he ate his full 56ml of formula
but threw up about half of it. The important thing right now is to get
him to eat, and to keep it down. That is what they are going to mainly
be working with him on at Kaiser.
They
said this could take up to a couple of weeks for Kaiser to get him
eating the way he should so he can start gaining weight. Lets hope it
doesn't take THAT long though.
23 Apr 2009
So
when I got to the hospital today Colin was in a new bed. Overnight they
had his switched over to a crib-type bed instead of the regular NICU
beds. He just has looked so much more comfortable and happier the last
couple of days it makes me so happy.
They
tried feeding him from a bottle earlier this morning before I got there
and the nurse said that he did really well with that.
He is still not throwing up which is awesome!
The
nurse said that the doctors were going to be calling Kaiser today to
talk to them about possibly transferring him back to Walnut Creek. I
don't know if when it will happen "if" if does so please keep him in
your prayers so he can come closer to home. It has been very tiring
driving back and fourth from the city.
Not to mention expensive!
On
a sad note: There has been another little CDH baby in the NICU named
Kaden. He arrived there a day after Colin on Friday the 2nd. Kaden and
Colin have been in the same NICU room up until the end of last week
when they moved Colin to the next room up.
We
have gotten to know Kaden's mom and dad over the last few weeks and
they have helped us a lot with handling this and vise versa. Kaden and
Colin have been right there next to each other the whole time fighting
this defect together.
Today
Kaden passed away. His little lung was not enough to support him and
the family had to make the hard decision to turn off his life support.
As a mother I would be devastated and can only imagine how it would
feel to lose your baby after only 17 days.
Having
a baby with the same condition just makes me that much more sick when I
think about the situation. I am so grateful that God has been there
helping Colin fight this. This makes me really appreciate life and how
precious it is. I'll never forget that every time I look at Colin.
23 Apr 2009
Colin
was able to get off the CPAP machine today! He looks so different! I
have not seen his full face yet and I finally did for the first time
today. It's amazing how much he has changed since he was first born
almost 3 weeks ago. I feel like I'm missing so much.
He's
still handling his food well. Still breathing nice and calm on his own.
I'm so proud of how strong he has been to fight this. He's my little
warrior.
Please keep praying that he can keep up the good fight and come home soon! I know he wants to get out of there.
22 Apr 2009
I
was able to hold Colin again today. He seems to be doing a lot better.
Since he has been on the lasix he has been peeing still a whole bunch
and his CO2 number have continued to drop.
The
last couple of days he has seemed a lot more comfortable and is
breathing a lot less labored than he was before. All of his other stats
looked very good also.
They took him off the other setting again on his machine so he is back on the lower pressure setting and doing very well.
They
bumped up his feedings again to 30ml which is 2 oz every 3 hours. He
threw up twice today so they are still giving him 30ml, but they are
giving it to him slowly over an hour. He seemed to hold that down well.
They just need to work his little body into eating 30ml in one sitting
like normal babies do. I'll know tomorrow how he took that and if he
threw up again.
Everything
is looking good right now so I am praying that he continues to improve
or stays the same. If that is the case then the will be able to be
changed to a nasel cannula and then possibly go home sooner than later.
If not go home than at least get transferred back to Kaiser and it's
not so far to drive.
"FINGERS CROSSED" and many many many thanks to God that he is not doing worse than he is.
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